I
don’t know why this came into my mind this morning. Maybe I was dreaming, maybe
it’s just time to write it.
What is more
important, quality of life, or quantity of life?
Most
people would say – quality. But what happens when they were faced with the
reality. If your husband, wife, mother, father, child were in a coma, had no
chance of recovery would you say – “turn off the life support systems”. Using
their head thinking, many people would say: “Turn off the support systems, let the
person die. They have no quality of life. Without quality, there is no point in
living.”
The
reasons for not letting someone go are really quite selfish reasons – I’m not
ready to say goodbye to you. I don’t want to live my life without you. So I
will make you live, even as a vegetable, even when you have no quality of life
- so I can hang onto my hope. I can see
signs of life in you because I want to. I’m not ready to let go. I believe it
is wrong for you to die and for me to let you die, so I will not let you go. I
am in control of your life. I know what you want.
The reasons
for turning off life support systems are also be quite selfish – I’m tired of looking
after you. I’ve had enough of our life together. I need a break from you. I
have no life because of you.
These
decisions are not as much about the person who is dying as those who will be
left behind. For all people say, this is the best for my
mother/father/daughter, no one can say what is the best for another individual.
They can only say what is the best for themselves.
We
see a lot of media stories about people who choose to die; others who stop a
family member from dying. Stories about people who are glad they didn’t kill
themselves. When outside influences become involved (usually the media and/or
right to lifers), then the decision becomes more emotive and difficult for the
family. These outside influences have no idea of the reality of the situation
for the family who has to make the decision.
I
was lucky. I didn’t have to make that decision for my daughter. However, I did
make a no resuscitation order to be put on her file. Was this an easy decision
to make? No, it wasn’t. But I believed that my daughter’s body was deciding it
was time to die. Did I tell my daughter it was okay for her to go? Yes, I did.
Did I, in these two actions, hasten my daughter’s death? I don’t know. Quite
possibly. Was it the right decision? Yes, I firmly believe it was the right
decision and almost 8 years later, I have no regrets.
Would
I have been able to say: “Turn off the life support” for my daughter. I hope I
would. I hope that my own personal grief in losing her would not stop me from
doing what seemed to have been the best for her. Susan had no quality of life left. She was
sick. She was tired. She was virtually living in the hospital. That is no life
for anyone.
And
I hope, that should I be in that situation, that someone will make that
decision for me and turn off my life support systems. I do not want my family
and friends to live with that level of unrealistic hope that someday, someway a
cure will be found. I want my family and friends to accept the reality of my
death and to move on in their lives.
Madeleine
Thursday, 18
May 2006